This site was created with the kind assistance and oversight of several medical doctors and specialists familiar with Dercums Disease. Healthline Media does not provide medical advice, diagnosis, or treatment. There are many documented cases of divers and fighter pilots still experiencing the bends even with oxygen pre-treatment. Dark lips are often the result of hyperpigmentation. Secondly, Fibromyalgia is incredibly widely known, as it kind of became the disease du jour of the late 1990s. One company with a new drug on this website, RZL-012, has been approved by the FDA to move forward to study this drug as an orphan drug for Dercum disease. Even if you havent been diagnosed yet, they can be a great resource. Absolutely not! No specific treatment exists for Dercums disease. Ms. Lawver still operates the site today and does her best to update it whenever needed. Comparisons may be useful for a differential diagnosis. Phone: 202-588-5700. Dercums Disease, on the other hand, is very rarely known by most medical professionals. An association with bouts of depression, memory or concentration problems, anxiety, and a susceptibility to infection has been noted in some cases. Consider working with a pain management specialist to find the safest combination thats most effective for you. Theres no cure yet, but some treatments can ease the symptoms. But no one should sacrifice their life on the altar of speed! In a country with a population of just over 9 million people, imagine multiplying and extrapolating those 10,000 sufferers out to the 60 million people of the United Kingdom, the 82 million of Germany, or the nearly 296 million citizens of the United States. Suite 500 Please, do your research and always insist on science-based medical information. Available at: https://www.omim.org/entry/103200 Accessed Jan 6, 2020. Using her prior experience having established an online information and support group for toe amputees, she soon secured the cooperation of the doctors on her own diagnostic team and managed to recruit the worlds leading Dercums researcher. We hope youll take the time to look for your questions here. Dercums Disease If we dont have a program for you now, please continue to check back with us. But unfortunately it is often either misdiagnosed or undiagnosed. Theres no dark spot on an x-ray, no abnormal blood tests.
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